Resources for patients and families

Association for Spina Bifida and Hydrocephalus (ASBAH) 01733 555 988 (9am–5pm Monday - Friday). Website: http://www.asbah.org

Down Syndrome Association
020 8682 4001 (10am–4pm, Tuesday–Thursday)
Email: info@downs-syndrome.org.uk; website: http://www.downs-syndrome.org.uk
Information and support for people with Down syndrome and their families.

Mencap http://www.mencap.org.uk
England and Wales: 020 7696 5593 (information line)
Northern Ireland: 0345 636 227 (family advisory service line)
Information and support for people with a learning disability and their families in the UK. Provides residential, employment, further education and leisure and holiday services.

Scope 0800 626216 (helpline)
Website: http://www.scope.org.uk
Information, emotional support and support groups for people with cerebral palsy and their families. Only some people with cerebral palsy have learning disability in addition to their physical disabilities.

Contact a Family 0808 808 3555 (helpline 10am–4pm, Monday–Friday)
Website: http://www.cafamily.org.uk
Works across the UK to support families caring for children with any disability. It is particularly useful where there is a rare condition.

Circles Network 01788 816 671
Website: http://www.circlesnetwork.org.uk
Provides information on setting up circles of friends and circles of support to help people with a learning disability have a more interesting social life.

I CAN 0870 010 4066
Email: info@ican.org.uk; website: http://www.ican.org.uk
National educational charity for children and young people with speech and language difficulties.

Association to Aid the Sexual and Personal Relationships of People with a Disability (SPOD) 020 7607 8851
Website: http://www.spod-uk.org
An online resource exploring the issues of personal and sexual relationships of people with a disability

Benefits Enquiry Line 0800 882 200
For information about Social Security benefits for disabled people.

The Family Fund 0845 130 45 42
Website: http://www.familyfundtrust.org.uk
An independent organization helping families caring for a child with severe disabilities. They may help pay one-off costs such as holidays and washing machines.

Leaflets are available from the Royal College of Psychiatrists (http://www.rcpsych.ac.uk): Depression in People with Learning Disability, and Patient's Rights and Monies

Leaflets are available from the Mental Health Foundation, Tel: + 44 (0) 20 7803 1100; website: http://www.mentalhealth.org.uk: Learning Disabilities and the Family: the Young Child with Learning Disabilities, and Learning Disabilities and the Family: the Teenager with a Severe Learning Disability.

Books Beyond Words is a series of picture-books for adolescents and adults who cannot read. They can be used by parents, carers, GPs, nurses and others to help communication about important topics. Titles include Feeling Blue, about depression, Going to the Doctor, Going to the Hospital, Going to Outpatients, Keeping Healthy Down Below, When Dad Died, Making Friends. The Royal College of Psychiatrists, 17 Belgrave Square, London SW1X 8PG; tel: 020 7235 2351; website: htttp://www.rcpsych.ac.uk/publications/index.htm

The Foundation for People with Learning Disabilities produces the information booklets Get Moving (for people with learning disabilities who are thinking about leaving home), Leaving Home, Moving On (to help parents who are planning leaving home with their son or daughter), Learning Disabilities and The Family: The Young Child, Learning Disabilities and The Family: The Teenager. Publications, The Mental Health Foundation, 83 Victoria Street, London SW1H 0HW, tel: 020 7802 0301; Email: fpld@fpld.org.uk; website: http://www.learningdisabilities.org.uk.

Last edited: 4/7/2005

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